Thursday, May 1, 2008

Kate's plagiocephaly

Two views from top

It's been a while now that we've noticed Kate's head shape as assymetrical. Since she was 6 months old we've already noticed her irregular head shape. We've tried positioning her to lie on the side away from the flat spot of her head but even after months of doing this positional therapy, it didn't improve her head shape that much, contrary to some success stories from the internet.

During her 10th month, we went to a craniofacial specialist in KKH and he ordered a CT scan, which we didn't get to do since during that period, Kate also got sick and hospitalised, and had bouts of diarrhea, hence, a follow up visit also fizzled.

It's only now, at Kate's 15th month, we're picking up on treatment options available for her head shape. I know it's only cosmetic, but if you're a parent, you would know our dillema. We actually had a schedule this morning for a CT scan again, but we canceled it for fear of radiation side-effects based on what we read in some websites. I'm now thinking we should've just had it done and get on with it. Guess we'll have to reschedule again next week and meet the specialist again as well.

There's a treatment in the US called the DOCband which we can try, but since it's only available in the US or Spain, we'll have to go there for her to be fitted with it. I have yet to find a conclusive answer if the treatment is available here in Singapore, so i've been enquiring in Australia too.

The other option available will be corrective surgery, which can be done here, but i have yet to justify to myself why we should consider an invasive procedure for my daughter's condition.

Fingers crossed, hopefully we'll have answers soon.

1 comment:

El Sid said...

We're in the same boat. My son was diagnosed with plagiocephaly and the doctor ordered a CT scan. A major study in the U.S. has recently been published about the dangers of CT scans, especially on children, and the over prescription of them by doctors, who don't realize the amount of radiation they're exposing their patients to. What the doctor wants to rule out is premature fusion of the sutures of the skull. Well, this can be done with an X ray, which emits 175-200 times LESS radiation. So you're probably right in avoiding the CT scans. Tell your doctor you want an Xray instead.