Saturday, May 31, 2008

Kate on helmet


Day 2 with the helmet: She's now slowly getting used to wearing her helmet. At times she plays with it, treating it as a basket for her toys. I tried painting it with acrylic today to make a ladybug design, but it seems the paint can't adhere to the material. So now we'll probably find some stickers we could design it with rather than using paint.

Clip happy!


More clips? :)

Friday, May 30, 2008

CarmenBand



No brand cranial helmet of Kate done by a local orthotist named Carmen. Looks good, except for the slanted side at the back which i'm still asking with the orthotist if it can be tweaked or if there's a special reason for it. I'll know when she gets back at my email.

Update: According to the orthotist, the slant at the back was intentional since it will aid in restricting the rotation of the helmet when worn. She added that it can be tweaked if it puts too much pressure on that side.
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Thursday, May 1, 2008

Kate's plagiocephaly

Two views from top

It's been a while now that we've noticed Kate's head shape as assymetrical. Since she was 6 months old we've already noticed her irregular head shape. We've tried positioning her to lie on the side away from the flat spot of her head but even after months of doing this positional therapy, it didn't improve her head shape that much, contrary to some success stories from the internet.

During her 10th month, we went to a craniofacial specialist in KKH and he ordered a CT scan, which we didn't get to do since during that period, Kate also got sick and hospitalised, and had bouts of diarrhea, hence, a follow up visit also fizzled.

It's only now, at Kate's 15th month, we're picking up on treatment options available for her head shape. I know it's only cosmetic, but if you're a parent, you would know our dillema. We actually had a schedule this morning for a CT scan again, but we canceled it for fear of radiation side-effects based on what we read in some websites. I'm now thinking we should've just had it done and get on with it. Guess we'll have to reschedule again next week and meet the specialist again as well.

There's a treatment in the US called the DOCband which we can try, but since it's only available in the US or Spain, we'll have to go there for her to be fitted with it. I have yet to find a conclusive answer if the treatment is available here in Singapore, so i've been enquiring in Australia too.

The other option available will be corrective surgery, which can be done here, but i have yet to justify to myself why we should consider an invasive procedure for my daughter's condition.

Fingers crossed, hopefully we'll have answers soon.